For families

Privacy Policy

Last updated: November 12, 2026

Harper's Hope Resources ("we," "us") runs ourcancerstuff.com and its partner pages, like idpcc.ourcancerstuff.com. These are online courses, workbooks and tools for families going through childhood cancer. Many of you will tell us private things here, including about your child's health. This page explains what we collect, why, who can see it, and what you can do about it.

The short version

We collect only what we need to run your courses, your family page and My notes.
We never sell your information. We don't show ads, and we don't use ad trackers.
Your My notes are private to your family's grown-ups. We don't read them.
Card numbers go straight to Stripe. We never see them.
You can ask us to download or delete your information at any time: [email protected].

1. What we collect

Things you give us

Your account: your first and last name, email and password. Your password is kept securely by our learning platform, and we can't see it.
Your family members: the first name, age, relationship ("who") and a color for each person you add.
The family permission form: your name, your typed signature, what you agreed to, the date and time, and the internet address (IP) and device or browser you signed from. We keep these as a record that you signed.
Course work: lesson progress, badges, Check-In answers (for example, how someone is feeling), answers typed into activities and workbooks, and Treasure Box saves.
My notes: anything you type there. That can include your child's care team, medicines, appointments, symptoms, questions for the doctor and other notes. This is health information, so please read section 4.
Purchases and gifts: what you bought or gave, the date and amount, and any gift message.
Partner help forms (for example IDPCC families): what you'd like help with, your phone number and the best time to reach you.
Emails you send us.

Things collected automatically

Basic server logs: like most websites, our hosting company (Cloudflare) briefly records things like internet addresses and pages visited, to keep the site working and safe.
Your browser's own storage: the site saves a few small things on your device, like your sign-in, which family member is learning and settings like filters in My notes. We don't use advertising cookies or third-party analytics.

Things we don't collect

Card or bank numbers. Stripe handles payments, and we never see your card number.
Social Security numbers, insurance member numbers or medical record numbers. Please don't type these into My notes or anywhere else on the site.

2. How we use it

To run your account, your family page, your courses and My notes.
To let each family member keep their own progress and badges.
To take payments, deliver gifts and mail printed workbooks.
To send emails you need, like password resets and purchase receipts.
To pass partner help requests on to that partner's staff.
To answer you when you contact us.
To improve our courses using totals only (for example, how many families finished a lesson). If we ever share results with funders or partners, they are combined totals with no names, and never include note contents.
To keep the site safe and follow the law.

We do not sell or rent your information. We don't use it for ads, and we don't put your notes or your child's answers into AI tools to train them.

3. Who can see it

Who	What they can see
Grown-ups on your family account	Your family page, each member's progress and My notes. Only add people you trust.
Each child or family member	Their own courses and progress, not My notes.
Harper's Hope Resources (Niki Humpherys and the people who help run the site)	A family list to help with support: names, emails, courses, progress, whether the permission form is signed, and how many notes you have and what kinds. Not what your notes say. We open a note only if you ask us to help with a problem, or if the law requires it.
A partner organization, if you came through one (for example IDPCC)	For families in their program: the same family list summary as above (never note contents) and any help requests you send them. Partners use this to support your family, and they follow their own privacy policies.
Companies that run the site for us	Agilix Buzz (our learning platform: stores accounts, course work and My notes) · Cloudflare (website hosting and our sign-in and email service) · Stripe (payments). They handle your information only to provide their service to us.
Others, only if required	If the law, a court order or keeping someone safe requires it. If the business ever changes hands, this policy would still cover your information, and we would tell you first.

4. My notes and health information

My notes is a private notebook for your family's care: names, medicines, appointments, symptoms and questions.

Only signed-in grown-ups on your family account can open it.
We don't read it, share it, sell it or use it for ads.
We are not your child's doctor or hospital. My notes doesn't replace your medical records, and it isn't sent to your care team. It's just for you.
Because we are not a health care provider or health plan, the federal law called HIPAA does not apply to this site. We still protect your notes carefully (see section 7), and we will tell you if they are ever exposed (see below).
If someone invites a second parent to see My notes, that person can see and change everything in it.

5. Children

Kids don't make their own accounts. A parent or guardian makes the account, adds each child and signs the family permission form before any child under 18 can start a course.
For kids, we only collect what the grown-up enters (first name and age) and what the child does in the courses (progress, badges, Check-In answers and activity answers).
The grown-up can see their child's course work, change it, or ask us to delete it at any time.
Kids are never asked for an email, phone number, address or photo, and they can't send messages to anyone on the site.
If you think a child gave us information without a parent's OK, email us and we will delete it.

6. How long we keep it

We keep your account, course work and My notes while your account is open, so they're there when you come back.
When course access ends, your saved work stays unless you ask us to delete it.
Ask us to close your account and we will delete your family's information within 30 days. Copies in our service providers' backups are removed on their normal schedule.
We keep payment and signed-permission records as long as tax and legal rules require, even after an account is closed.

7. Keeping it safe

The whole site uses a secure connection (https).
Family files, notes, gifts and permission forms are stored privately, not on the public web.
Every request for family information has to come from a signed-in grown-up on that family.
Staff and partner access is limited to what they need, and they never see note contents.
You can help: use a strong password you don't use anywhere else. Sign out on shared or hospital computers. Don't save ID, insurance, bank or card numbers in My notes.

If something goes wrong: no website is perfectly safe. If we learn that someone got into your information without permission, we will tell you by email without unreasonable delay. We will say what happened and what we're doing about it, and we will tell any government agency the law requires.

8. Your choices

See or change: change names, ages and notes yourself on your family page and in My notes.
Download: ask us for a copy of your family's information.
Delete: remove a family member yourself, delete any note, or ask us to delete your whole account.
Emails: we only send emails you need (like password resets and receipts). If we ever send news, you can unsubscribe.
Your state's rights: some states give you extra rights over your information, including health information. Email us and we will honor them. We won't treat you differently for asking.

To make a request, email [email protected] from your account email. We'll answer within 10 days.

9. Links to other sites

We link to helpful groups, like hospitals, camps and foundations. Their sites have their own privacy policies, and we aren't responsible for them.

10. Changes to this policy

If we change this policy, we'll update the date at the top. For big changes, we'll email you or show a note when you sign in.

11. Contact us

Harper's Hope Resources
[email protected]

If you or someone you love is struggling, call or text 988 any time (U.S.). In an emergency, call 911. · Terms of Use